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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, October 7, 2017

September 5th and 6th

And finally May starts Preschool. She had an orientation the first day which wasn't nearly long enough for this girl. She wanted the "really day" to happen. I had to tell her "one more sleep" then it will be the really day.

First actual day 


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