Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, October 7, 2017

September 11

Alex got to help at the Delta Golf tournament on Tee 1.
We had a great time handing out waters to the golfers, getting lessons and cheering way louder than we are really supposed to in golf. Alex has really found a love for the sport and now needs to save up for a set of clubs. 

We got J-dawgs which is never a bad thing.

Alex also shared his story, which I hear was awesome but missed because I needed to grab the other kids. The golfers were way way behind and our 11 o'clock appointment turned into a 2:30 time. Which made it hard for the little kids. I rushed back but he had already spoken. 

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