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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, October 7, 2017

September 7th

MayLee rushes into the bathroom this morning and says in an overly dramatic voice. (I have no idea where her overly dramatic-ness comes from)  "I have been having the worst day ever, and I know exactly why!!! My underwear keep falling down, they are on backwards". -she proceeds to strip and readjust her clothing. Then says. "Now these will stay perfectly on my bum, plus also, everyone thinks I am the most beautifullist today because of my side pony tail and side braid."

Hey folks if you are having a bad day, maybe you need to re-adjust your clothing. And you need a side pony tail. Just saying!!!





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