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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, October 7, 2017

September 2nd

Smith's really came through for Alex. He wanted to cross another thing off his Live list, throwing the first pitch at a baseball game has now been accomplished. Not only did he throw a great pitch and made it all the way to the catcher. He got the ball back signed by the catcher, then Buzz came out and gave him a bat signed by all the players and a basketball signed by all of the Jazz team. I was a dream night for Alex.  








Ry requested no pictures and Homer Grandparents were there too. 





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