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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Saturday, October 7, 2017

September 2nd

Smith's really came through for Alex. He wanted to cross another thing off his Live list, throwing the first pitch at a baseball game has now been accomplished. Not only did he throw a great pitch and made it all the way to the catcher. He got the ball back signed by the catcher, then Buzz came out and gave him a bat signed by all the players and a basketball signed by all of the Jazz team. I was a dream night for Alex.  








Ry requested no pictures and Homer Grandparents were there too. 





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