Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, September 28, 2008


We REALLY needed to get out of the house for a minute!!! It is always so hard when we all haven't been feeling well... So we took a little trip to the park. Both the kids like to swing. Check out Gator's ouchie... Poor baby!

So I have changed bedding five times, due to vomick and poops. I have changed more poop-tastrophies and blow-outs than I can count... I caught "ick" in my hands on Saturday night and did the heaves, thank goodness I am not preggers or it would have added to the stress...And the smell.... My poor hubs felt so icky he had no strength to do anything yesterday.(it is not like the machine to have a glitch) But I think we are getting past it all.,.... and I am ever so thankful that we are not at the hospital...Here is the Gator waiting in the ER... He keeps looking at me like, just take me home... I wanted to make a special shout out to Missy the wonderful, who happily watched Ry while Gator and I waited in the ER... What life saver.
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1 comment:

Anonymous said...

So sorry everyone is sick- blow outs are the worst! They squick me out too.

And I recognize that playground! Glad you're all enjoying it as it definately sounds like you needed the break. It makes it feel worth all the hours it took to get it done when I see families enjoying it. Thanks for making me smile!

Pst- Bee loves the hair. Thank you!