Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, January 29, 2013

Actual account

As sweet as these sisters are, laying here together bonding... These things actually came out of my mouth...
"Let's just lay by the baby, not on the baby"
"Please don't stick your finger in her eye. No, her nose is not okay either"
"You might not want to taste that"

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