Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, January 23, 2013

Ditched the oxygen today!

I kept the tender grips on because they are nasty to pull off and I still need to check her tonight. I think we beat this yuck!! I heard that it might snow tomorrow and push the inversion out of the air. Now it won't hurt to be outside. Now if we can just figure out about the TCS we will be set...

1 comment:

MEL said...

Yay! I hope all goes well for your darling little one! She is a cutie!