Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 31, 2013

Crooked booty update

So as you can see this little booty has been looking a little better... It is still kind of inflamed and the lesion is still rather raw... But her over all appearance looks better. It kind of looks like a little tail... Doc. M had us go get a blood work up... CBC, CRP, Labs, and such... All came back looking normal. We made an appointment with Neuro for the end of February and will have her evaluated finally. We will still need an MRI and CT, she has to be 6 weeks away from the RSV in order for us to go ahead with those tests.  
Speaking of RSV, I think that the snow helped push the yuck air away and this baby cleared right up. She didn't even need to go to suction clinic. I am so grateful it didn't effect her soooooo bad. I felt terrible that she got it despite all of my phobias about germs... We sent back the oxygen. DOne and DONE! 
She is so yummy!!! I just wanna eat her up! 
Big sis thinks she should all the time! 
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