Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, January 21, 2013

Today's update

So the great news first..... Munchie is in the clear. She has a dimple but it moves freely and Dr. Mashkuri doesn't think it is tethered!!! We can just watch it to make sure it stays good!!! Hurray!!! More good, MayLee sounds great and is Satting well. We can begin to wean her off oxygen!!! My little fatty is gaining beautifully and is already 9.5 lbs... Doc was pretty disappointed that we didn't get labs and panels done. That is one reason she had us go to Primary Childrens. These little test would help us know a lot more. Like if baby was septic. Obviously she isn't because she is getting better, but I could tell my wonderful Doc (who is on top of these things) wasn't impressed! So she ordered the MRI for later this week. I will also set up a visit with Neuro with some amazing recommendations I think we will be in great hands. During the MRI visit we will do the labs and panels that the doc wants! She has been less snotty today and her cough sounds like that lingering junk mover. All of us seem to be on the mend. So much for our long weekend being full of fun and relaxation. I am going to have to make it up to the kids later!


likeschocolate said...

yahoo! Good new!

Cynthia said...

Been thinking of you guys! I like good news- let's keep the good news train rolling!

Hillary said...