Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 31, 2013


Between nursing, cleaning up messes, and having fun; I forgot to snap a few pictures of the Borax heart crystals we made... so darling..
Here we are finger painting.
Gator almost got the idea... he mostly just liked being one with the paint! 
We all ended up *smushing the paint at the end, that was the most fun you see! 
Dirty *feen-nose as Munch kept saying... She had fun, although she is my "I sticky, wash it!!!" kid. 
Throw a little crepes into this lovely weekend and it was pretty much a success....  
We were glad daddy made it home to us safe and sound... The snow tried to keep him away but we finally got him home very early Monday morning...

*smushing- Brynn word for smashing + mushing
*Feen-nose- Munch word for fingers
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