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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, April 29, 2013

Sneaky sneakiness

So May looks at you all cute, smiles and coos so you forget that she has her little tricky fingers by her face. If you look away for just two minutes... Or go to retrieve Munchie from the bathroom counter where she has gotten a silver gum wrapper sneezed out of her nose(I am not even sure how long that icky thing was up there).. My little May Bird will pull her canulas out of her tender grip. But.... With crappy Sats like this she needs it in her nose. So Munchie is up to the task of pushing it back. Then something similar plays out like this the whole day. We visit the doc again today.. Soooooo many doctors lately!









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