Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, April 7, 2013

Wonderful whirlwind!!!

Is there such a thing??? Well this weekend has been wonderful and crazy all in one. We went out of town for conference weekend. We visited with family in Idaho Falls. Always a fun trip until the end turned sour. Saturday after the sessions of conference and lemon meringue pie... May started working really hard to breath. She was blue and just wasn't herself. I believe that it was all those extra prayers that pushed us to take her in.. So here is the problem, we are out of town, not at our regular hospital with faces we know and love. Daddy has to work, the kids have school and to top it all off if she is this labored in breathing there is no way she will have the MRI that was planned for Tuesday. All that aside she is still not feeling great.. We run her to a Redi care... They told us that with how blue she was we needed to head to the ER. They gave her an Albuteral treatment and some high flo oxygen and she makes a big improvement. She continues to improve through the night. Today she has been much better and we are headed home with oxygen and me sitting in the back to watch her. Now I am really on high alert. She isn't convinced she likes the carseat so she will get sad and I realize that, but having her cry stresses me out. Tomorrow she will see her pediatrician and if you were wondering what happens with her MRI... I will have to cancel. Meh, such is life. Thank you all for the wonderful support and prayers. It was comforting to have conference this weekend and listen to words which I am certain are meant for me.


likeschocolate said...

Crazy is right! Glad she is doing better!

berrymom said...

Oh dear! That is so hard. Thank you for posting. We have been praying for you. I am sorry this is happening. Love you!