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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, September 18, 2013

Birthday girl

My little girl is changing into a beautiful young lady. She doesn't want to be lumped with littles anymore she wants to be a tween... Aahhhh that means friend stress and ideas about how things should go. She is managing it all so great. Her big day landed on a Sunday. It is also a family year so we didn't need to worry about coordinating a party. Just spending the day with her. 
She got roller blades, clothes and pretty much spoiled by everyone. 
She is the new roller derby queen. 

We went to gramma and papa's for dinner.. 
She wanted high heal cupcakes.. 

She loved every minute of her day and wished it could go on and on.









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