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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Tuesday, September 10, 2013

Cloudy with a chance...




Our friends the Patterson's must know we love a good deal/free fun....
They gave us a call to let us know the Cloudy food truck had stopped right here in our very town... WHAAAAAH????? Sweet we were on that like white on rice....



They handed out Tocodiles... and hipopotatos and whale subs... it was pretty awesome... 

 We can wait to see the movie now. It looks so fun...

Um... Not sure what this pose is all about... 

Doesn't he give the same smile every time.,.. I try and tell him to relax. He can't.

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