Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, May 14, 2007

Follow up

I just wanted to do a follow up from earlier. Well his blood culture came back positive for a grand rod infection. So they are treating Alex with an antibiotic. They also removed his pic-line to make sure that wasn't the sight of the infection. They also put in a new I.V. in his head because nothing else was working. They put his art-line back in as well. He WAS actually fighting withdrawal which is why he had the shakes and purple toes and why his sats weren't raising. They just upped his dose and will take him off those drugs a little slower. K- We will know more tomorrow


Anonymous said...

It sounds like little Alex went through quite a bit today. I'm hoping and praying that these changes will help him on his road to recovery! If you can't tell, I too have become an addict to your blog. I look forward to each and every entry! I read a quote today on Andrew's blog and think it applies here...I hope they don't mind that I share it. ;)

"He that can have patience can have what he will." - Benjamin Franklin

You have shown an amazing amount of patience and I have complete faith that you can and will get through these trials. I'm in awe of your strength during this difficult time! If you need anything or we can help in any way please drop us a line. We'll continue to keep you and your family in our prayers!

Many hugs,

Anonymous said...

Brynn & Jeff,
I can't believe all you're going through! You two are sooo strong! Please know we're praying for you and baby Alex!

Melissa :)

Anonymous said...

Oh what a precious picture of you Brynn and your children on Mother's Day. Thank you for sharing that with us. I want you to know that I look up to both of you. How wonderful it is that through faith in the Lord Jesus Christ we go through such challenges at time in our lives with peace and comfort. We love you and continue to have your family in our prayers and hearts.