Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Friday, May 18, 2007

Moving up

Well Alex is down getting yet another pic-line and then hopefully he will be moved to the third floor. So for those of you who have been here, you know that means he is doing well. He is on full feed of the portegen and he is also on antibiotics...other than that they seem to slowly be taking things away. It is great that he is having these great days. I got to hold him again yesterday and today and it is so wonderful. We are just happy. I will post pictures soon of everything... we just haven't had a minute.


Anonymous said...

That is wonderful news! : )))


Terry said...

Great!!! Good days are the best!! I am so happy to hear the good news about progress. I hope your hair looks good! Love you lady!!

Quinney Family said...

Yeah!! The 3rd floor means the transition to home!!! Although Alex may not have the same attention given to him on the 3rd floor like the PICU, that in and of itself is great news because that means he is doing awesome and can be home for the NBA Finals and watch the Jazz win in style! It is the eve of my half marathon in Ogden and I know that every mile of the 13.1 that I will run will be on the strength of awesome kids like Bryson and Alex!! I am so excited for you guys and all the progress!!! Yeah!! You guys are great!!

Eric Q

Mike and Rebecca said...

great news, its been a loooong road and the best part is that your closer then ever to being together as a family. I am so happy for you guys, we hope and pray that things continue to do well.

Mike,Rebecca & Brinley

Anonymous said...

Jeff & Brynn -

This is Alayna Williamson. I check your blog daily and we have been praying for you. You guys are such a strength. Congratulations on the great progress!