Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, May 8, 2007

little to say

Hey everyone, Alex had a really quiet day today. Nothing to report, he slept most of the day. He got a new pic-line put in. Tonight they are going to try spontaneous breathing on the vent. This allows him to do all the work and acts like a back up if needed. He is just taking it easy so they can try taking him of the vent again tomorrow......maybe.... or maybe the next day.
Here's a picture of his little piggies!!!!


Anonymous said...

Soooo adorable! I love little piggies!! THANK YOU so sharing!


Anonymous said...

I love baby feet! So stinkin cute!

Anonymous said...

That is so cute!! Little tiny Alex toes! I think that is the sweetest ever! Hope things are going good.