Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, May 3, 2007

Until now.

We finally got Alex's chest closed today. The risk of infection kept getting bigger and bigger with each day. So, even though he was still a little swollen, Dr. Kouretas decided to try. The procedure took a little longer than normal because of the extra swelling and his blood pressure dipped some; at this point they will continue to watch him and make any adjustments to his meds as necessary. Overall things are looking okay. Ryleigh had so much fun today. She went to a neighbors for the first time. The Homer's (no known relation) she made us a cake which she put frinkles and Fonge Bob Fuare Pants sugar candies on. She made a darling little visor and a bead necklace. She played and played. Thanks to grandma's and papa's and aunties and Shanna who have watched her. We really really couldn't do all of this without your help. We love you.
P.S. Shanna took pictures of Ry today, so I will download them soon.


Anonymous said...

We are excited to hear that they closed his chest. This is another step towards recovery and getting stronger. He has got some great parents and alot of prayers being offered on his behalf. Go Alex!!!

Eric Quinney

Anonymous said...

We love FRINKLES!!! Sounds like thing were good today! Give Ryleigh a hug for me!

Anonymous said...

Yeah! What a great day. It is so exciting to have his little chest closed. That is a big step for him and for you. Alex will soon start to look more and more like himself and prepare to go home. We keep you all in our prayers. I am so glad that you and Alex are all doing well. You really are amazing people and I have been telling your mom how blessed you have been to have such a team of support. Heavenly Father just planted the right people and experiences in your path to prepare you and help you. What a strength that must be to you and what a strength you are to others, including to me. Thank you for sharing and for your example. Love, Kathy

Anonymous said...

That's a big step! So glad to hear that Alex is doing well!! Prayers are still going up for your family from our house too.


Anonymous said...

Wow Brynn! Such GREAT NEWS! I am so happy! Thank you for keeping us updated! Prayers are with you always!