Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, May 16, 2007

Nice Day

The news on the Home(r) front is... Alex is having a nice quiet day. He got his pacer wires out today. He also got the results of the bacteria he got. It is called bacillias cereous, when you say it is sounds like bus-silly-us-serious. It is a skin contaminant. It also comes from re-heating ham fried rice. I thought that was interesting and I want to google it as soon as I am done here. He is on the antibiotic to take care of that. He also is off his milrinone, and will go down SLOWLY on his pain meds. They dropped his o2 down to a liter, he is tolerating all this. Ry is had a blast with Clawson's. She made the most darling build a bear for Alex. I love that she is so good with him. Today after dinner she stripped down to her nothings and ran around outside with a naked Jackson too; for a while loving it. Jeff is up at the hospital tonight with his boy and he and Alex cheered really loud when the Jazz won the game... I am just laughing at them all and happy to be the mommy and the wife...

1 comment:

Anonymous said...

At some point, we are going to have to deal with the fact that our children like to be naked together, but for now it is just fun! Thanks for being our friends.