Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 23, 2007

Higher up

So we made it to the third floor. He is doing so good. The ENT team dtermined that he has a little laryngelmilasia, he will be fine. They just give him some meds for reflux. Just wanted to tell you he's good.


Anonymous said...

So happy to hear that Alex is moving on up! I'm praying everything continues on this path and your stay will not be much longer.


Angie said...

That is Wonderful news! I am so glad he is doing well!

Mike,Rebecca & Brinley Patton said...

A step closer to the front door,I'm glad to hear that he is recovering on the 3rd floor. Brinley keeps asking about the baby with the ouwee like hers,that was the first time I think she has thought about her scar.I hope things continue to improve and that Alex's recovery will go well and he comes home soon.

Mike,Rebecca & Brinley Patton

Anonymous said...

Congratulation! We just wanted you guys to know we have been following along throughout Alex's journey, and our thoughts and prayers are constantly with you all. Brad can't wait to get over to Home Teach you guys again! Good Luck and God Bless. By the time Alex gets home, he'll be a celebrity!

Brad and April

Anonymous said...

Wow we are so happy for you. He is as strong as his parents. Hope you are getting alot of cuddle time with him. Best as always The Farnworths

Terry said...

YEA!! I am so glad to hear the good news. I ahve been thingking about you so much. One step closer. Thank is great!

Alisha said...

Yeah! we are so excited for all of fyou and especially sweet little Alex.. he has been a trooper! we hear he will soon be home and you wil all hopefully get settled! It is such good news. we love you all!
Ryan, Alisha & Gracie

Kami said...

It was so great to meet Alex, what a cutie! I'm so glad he is doing well!

Quinney Family said...

We are glad to hear that Alex is getting ready to go home. I know one of the hardest things for us when we came home was all of our friends wanting to come over to see Bryson and us wanting to show him off. We are grateful for our understanding friends when we did not allow any non-family visitors. These herts kids are fragile and the more people that are around, the more chances for problems. It was six months before we took Bryson to Church. So don't be afraid to protect Alex a bit, those of us who care understand and won't be offended. You guys are great!!!

Eric Quinney

Jennifer said...

Amen to the Quinney family... but I am family right?! My family will be happy to just peek into his window when he is sleeping.
Really, I think that the Quinney's are right. Sometimes, being a friend means that you listen to what is needed rather than what you want. Just know that we are glad to help in non-intrusive ways like hanging out with Ryleigh and cooking for yall. We will be two houses away- waiting by the phone!:-) Congratulations! Give baby Alex kisses on his toes for me. We love you all.

Alisha said...

Thank You Quinney family for such great advise! Brynn(not that your a grem phobe yet!!) You will be and you are beginning to understand just how protective you will have to be! Don't be afraid to be bold! Sorry I won't be one of those pesty neighbors, haha Jen:) I live too far away, but if I were close you know I would be respectful and not kiss him on the lips! Love you much!