Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, May 28, 2007

More buddies!

Baby-K , Ryleigh and Jackson have been bathing together since they were tiny. We will just have to end it pretty soon. With Alex and the England two on the way from Ethiopia there is just no way to get three more behinds in one tubby. Ryleigh and Ellie are playing in the water in the other photo's. Ry did a very thorough job putting on the sunscreen. Again thanks for all the help.

.... We had a great day today. Ryleigh, daddy, grandma, papa Clawson and the girls went to see 'Shreck The Third'. Then they came over and had a picnic and put up Ry's new trampoline. Grandma and Papa Homer came over for the Jazz game and we all have just loved on the baby and Ry all day... We are starting to get the hang of administering Alex's drugs and making sure everything looks good. He is on about 7 different drugs and has his feeds given through a pump that goes into a tube that goes down into his intestines. He has a huge cord for his O2 that we have been trying to teach Ry not to trip on and just making it all work the best we can.


Anonymous said...

Congrats on being home!!! What wonderful news! I hope things are going as well as possible and you've been able to relax and enjoy some family time together.

Big hugs,

Anonymous said...

Cute Pictures!! I am so glad you guys had a good day. You are beoth really doing good with all you have learned. Remember we are still just a call away!

Anonymous said...

This is Alayna again. That is so great he came home!!!! I am so happy for you. What is next? Are there more surgeries to come or is he all done? I'm not 100% sure what was even wrong to begin with, but I sure hope you are out of the woods now. Congrats again and in all your spare time (ha ha) blog what is to come in the future for little Alex. Thanks!

Anonymous said...

We are so thrilled for you guys. I bet you're glad to all be home. He's such a cutie. We hope things continue to go well for all of you.