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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, May 31, 2007

Home--ER----PICU

Where do I start... Alex is back at the hospital. We successfully made it 4 days at home. Tuesday night Alex started to become inconsolable and would only take about twenty minute naps that left Jeff and I very exhausted. The bishop's wife Heather called and said since she'd been around all the machines with one of the triplets she felt comfortable enough to come and hold him while we slept for a couple of hours. This turned out to be soooo nice because yesterday he continued to go down hill. I needed the rest to even think clearly enough to see something was wrong. The home health nurse showed up that morning and started to ask if the way he looked was normal. Alex had also stooled at least eight diapers between 8 am and 11 am. We were also scheduled to take him to see his pediatrician for the first time. The nurse suggested that I call her when I felt uneasy about things. Well I ended up calling the NP at Primaries and told her his symptoms. She told me to bring him into the emergency room and she would call and tell them we were on our way. I called Jeff and we went to pick him up and drop Ry off with grandparents. We flew to the hospital making it fifteen minutes faster than normal. Jeff dropped me off so he could go park and I went right in. The admit took one look at Alex and rushed us back to begin treating him. That was the scariest part. How startled everyone looked when they saw him. Then they decided to move him to the PICU and quickly intubate him. He has had the gamete of tests and cultures run on him but everything comes back fine and today he has turned a 180. He is clearly looking better and his sats are normal. He is perfect on his gases and the doctors are puzzled as what would make him so sick yesterday. Needless to say he is resting well and they will try to take him off the vent in a little bit. They think it is withdrawal and let me tell you that is scary stuff. If you have ever gone off even sugar or soda and gone through withdrawal it isn't fun, but to go off a drug and not be able to tell mommy what is going on it is a nightmare. They were very surprised we didn't bring him in an ambulance because there just wasn't much fight left in him. So needless to say... If you thought I was paranoid before, wait until you see me now. Thank you for your continued prayers......Brynn

8 comments:

Anonymous said...

Oh Brynn! We had the lovely experience of taking our dd Aubrey into Primary's with RSV and when you go to the ER's front desk and they rush you back immediately (past a full waiting room)...it's so scary! I'm in tears just remembering and knowing how hard that had to be for you. But also some happy tears that Alex is doing better and things are hopefully looking up. Don't worry if other people think you are paranoid. You are Alex's voice and advocate, you have to do what you feel is right for him. I do not consider that paranoid but protective and what every loving mommy would do for their baby. Always praying for you,
Joni

Nate said...

You two are incredible parents. I am so grateful that you were concerned enough to take Alex to the hospital. I am glad that he is stable and well and excited for the opportunity that you had better give me to hang out with Alex during some of my insomniac nights. I adore Heather and all, but I could use some sugar time with Alex, too!:-) Take care of yourselves.

jlh1974@yahoo.com said...

That Nate comment was really Jennifer's! Don't let Nate take credit for it!

Quinney Family said...

Brynn and Jeff,

What can I say?? I know how you are feeling right now, wondering why you can't catch a break sometimes, but then comes the moment when that 180 degree turn comes and you are thankful for all the miracles that have happend to get you to this point. The Lord has his hand in your life and don't forget that. When Bryson had 2 Life Flights trips back in February, I thought that is wasn't fair to come this far only to have to constantly end up in the hospital. I was missing the fact that each day with him is a gift from above. Alex is strong, so are you guys and we are praying for you everyday, so that we can increase our faith in putting our trust in the Lord. He is mindful of you guys and you have many praying on your behalf. We put a little post abotu Alex on our carepage and a couple of people wrote us back saying they put Alex and you guys on the Temple Prayer Rolls. A guy I work with put Alex's name in yesterday while he was working a shift in the Ogden Temple. There is mighty force out here to always give you the support you need! Sorry for the long post. You guys Rock!!

Eric Quinney

Terry said...

You are doing such a great job! I am so glad you are trained and you know what to do. Alex is so lucky to have you and Jeff for his mommy and daddy! Remember I am just a phone call away!! We love you all and pray for you daily!

Angie said...

Miss Brynn: My heart breaks for you! I freaked out when I had to take Joey in to the ER for a fever of 102... I can't imagine what you are going through. What a roller coaster! I am so glad he is doing well now... what a blessing. You are a good mommy! Don't worry about being paranoid... I don't think you are because I am the same way. Being protective is what I like to call it!
I am here if you need anything!

Praying for you always!
Ang

Anonymous said...

I'm so sorry Brynn! We will be sure to keep little Alex in our prayer. I'm sure he will be home again very soon.

Anonymous said...

Our heart, and our prayers, go out to you,We are happy to hear Alex is doing better, He is an amazingly strong little boy.Tears of saddness can't be held back, thinking of the pain he has had to overcome, and the tremendeous hardship you as parents are induring,we know there is nothing you wouldn't do for your sweet little Alex and Ryliegh, Your strengh is fueled by the unconditional LOVE parents have for children, you will get through this! You are awesome and so strong, I know the Lord's blesings are with you,your family and friends are behind you 100%Welove you, your Aunt Linda and Family