Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, May 27, 2007


Alex knew he was home and streched right out for a rest.

Just being at home pictures! Dad loves his kids.....


Anonymous said...

Dorothy said it best, "There is no place like home". I know you will miss the Rainbow Cafe, but it is a small sacrifice to be home!!!

Alex coming home is just what the Jazz needed!! Good Job Alex!!

Eric Quinney

Anonymous said...

That top picture looks all too familiar. Sorry that we didn't make it to see him in the hospital last week. Super glad he is home. I hope you are getting some rest!


Anonymous said...

So glad that Alex is adjusting to home life! He looks so comfy in his photo! A plus to being born in the spring is you don't have to worry so much about RSV and the germ thing... well what so I say... I don't have to say anything! I love you all and am so glad that you are all safe and home! FYI- try using baby oil and a q-tip for removing tape on those canulas.LOL-