Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Monday, July 8, 2013

Daddy rides 100 miles

This is Daddies 5th year riding in the MS ride and his second year completing the century. He has been training so hard and we are really proud of him. He didn't disappoint. He shaved 2 hours of his time from last year. Also this is the first year that Ry volunteered. She had a blast. We jazzed up her shirt with some ribbon. She was one of the cutest volunteers out there.

May was not a fan of me putting her down to take pictures of Ry. She happily played in the stroller or in the sling the whole time we were there.

Ry is masterfully doing her duty. She misted riders as they finished the race. I guess I didn't realize how important that was until nearly every rider thanked her for her mist. She was happy to be in charge of it too, because it was SO HOT... 

May helped too! She held this sign for daddy! I volunteered last year while I was pregnant with May, we teased that this year she wanted in on the real action.

And this is our favorite cyclist!! He is so cute in his stretchy pants! Way to go!!!

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