Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, July 17, 2013

It starts!!!

We made it here bright and early this morning... All decked out in her hospital pjs, she is ready for this to start because this fasting is for the birds. She wants to eat and daddy has to hold her because she has a keen sense of smell and she knows her groceries aren't far when mom is holding her. The drive in was so lovely!! The lights of the city against the mountains with a sunrise that framed the whole thing!!! It was calming and a gift from Heavenly Father. And although we just got pushed out if line for an emergency case, she just fell asleep in daddy's arms and is content! 

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