Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, July 17, 2013

May update #2

I was up pumping when Dr. Walker came out. It sounds like everything went really well. He was able to detether her and also remove some of the fatty filum. Not all of it could be removed due to the fact that there was nothing to stitch it to to close. They are just finishing up, then we get to see her. 


Allison said...

Hooray! I bet you are relieved that they could do the procedure! Hopefully she recovers quickly.

likeschocolate said...

Yeah! So glad the surgery went well!

Chantell said...

That is great! Thoughts and prayers with you all!