Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, July 17, 2013

Definitely one of us

Miss May went back sleeping in the arms of Doctor Greensburg the anesthesia doc. It shouldn't surprise us when we get hiccups. Miss May cant keep her Saturation levels up. They called Jeff to ask about this and then they brought in the big guns... Duh duh duuuuuuuuuh! Doc Uchida, our pulmonologist. We shall see if and what we will need to do. Those darn lungs are tricky business. It's hard to know what we need to do in order to help her with this until we have more testing. We won't get more testing until her spine is taken care of.

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