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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, July 17, 2013

May update #3

It's been busy around these parts. I was able to go back to the PACU while May continued to wake up. She had a very itchy nose and wanted to wake up very slowly. She also wanted mommy and a huge snuggle and maybe something to eat. When you don't get those things you tend to be a little grouchy. It took us a long time, moving to the infant unit and some gymnastics (me standing over her to carefully nurse her while she lays flat) and some Lortab to make her comfy. She is taking a snooze now. We are going to play musical rooms in like five... 

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