Pages

Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, July 17, 2013

May update #1

After having a long visit between Dr. Uchida and Dr. Greensburg... They decided to move forward with the surgery. She has been intubated and is now Sat-ing at 100%. It should be 3-4 hours from now:)

3 comments:

Hillary said...

Waiting to hear. She will do awesome. She is a Homer!!!!

Anonymous said...

Hey- Been thinking a lot about you. I'm sending you my strength!!! xoxoxoxoxoxox

Tami Nelson
Thatchers Mom

likeschocolate said...

Hugs!