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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 10, 2017

April 11th

This girl is loving volleyball. I hope she keeps it up. We signed her up for a fun open gym at the high school. She was able to get some great advice and help from the coaches there.


Trouble Maker???

Ya look'n at'im 


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