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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 10, 2017

April 8th


Our Primary put together a darling Easter hunt. Asher just ran to one egg to eat the treats out. He didn't realize that you keep getting more and more so that you can get the treats out of multiple. He was so happy with his one, until the older kids had tons of treats, then he wanted all of their candy as well. 

 I just noticed that his chubby wrists look like someone put elastics around them. I love babies and their sweet little chunk. 


Eden has wanted a locking treasure box since her birthday. Jeff was so cool and took her to build it together at the shop. I think she sketched up her ideas and he made it happen. She was incredibly thrilled. It has a lock that even has a key. That is the most important part. And it also started a new thing she adores. She now is starting to collect a whole bunch of keys. 







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