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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 10, 2017

April 3rd

Gator also had a big doctors visit to check on his heart. We watch him a little closer because he has been known to do tricky things. But everything checked out. We even got to drop a few meds and lower is prograf (anti rejection) He is growing a ton and is doing so well. I leave these appointments with a thankful heart. I just love the staff who have done so much for us. And I am so thankful to Julie's family. 


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