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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 10, 2017

March 25th

Last day of our CMN portion. Alex was asked to do a live broadcast during the Extra Life Gaming. It was incredible. They had all the players with their Gamer names, then the players would be watched on a huge screen. Two commentators would describe what was happening. And also show how those logged in remotely were faring. It was like watching the olympics of video games and board games. 


After his interview he got to play. He loved it.


We packed up finally saying goodbye to all of our CMN friends and decided to go to our extended stay. 
We really wanted to go to the beach. After consulting friends and getting directions we went to Cocoa beach. 


Sand Gator


When we pulled up to the beach, we realized that parking was super limited and expensive. This little surf shop and the coolest owner, offered to let us park at his shop, for a minimal cost, and use his hose to clean up after. 

After the beach......












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