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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 10, 2017

March 24th

We had an amazing CMN breakfast with some of the Disney characters. It was the perfect way to start off the day. 




After breakfast it was time for the "BIG EVENT" we did a live show hosted by Nic Cannon. Poor guy looked exhausted, but still came out and supported the kids.
He did an amazing job introducing all the kids. Alex was introduced and ran up to Nic, it took a few extra minutes for Gator's buddy to finish his walk, so Gator got to stand by Nic and hang for a while. 


We decided to Check out Guy Fieri's menu at Planet Hollywood The observatory. It was fantastic food. I am all about the food.





Next we trekked back to the pool.

You gamers will appreciate this. Extra Life gaming had board games and video games going and we could go enjoy while they were competing. 
 












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