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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, May 17, 2017

April 29th

Jeff's grandpa wasn't doing too good. The cancer that had taken up residency had spread so much. Jeff really wanted a chance to visit. Little did we know that he would be by his side when he left this life. The kids were able to see him and say goodbye as well. It is pretty tricky to keep them occupied with matters that they don't understand for too long. So we visited cousins and went to lunch. They are always excited for the hotel because it means we get to swim in the pool. 













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