Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, January 9, 2008


We don't have much to report... We are waiting for the best time to extubate... I am in no rush and so when they ask me I say; when ever he is ready... Dr. Kouretas has ants in his pants about getting that tube out, I am sure he will keep them thinking about it.... They got his blood cultures back, it does look like he has an infection, but they have been treating him with antibiotics already so it should be taken care of....Today is Averee, my little sister's birthday!!! happy day to you... It is also one year since we had our first echo with Dr.Su and found out how special Alex's heart is....My mom's birthday was the day after surgery and we wanted to wish her a happy day too!!! (I don't think she really celebrates birthday's anymore...She celebrates the 'Anniversary' of her 29th birthday, which is totally different...) That's about it...


Anonymous said...

Hey Brynn- Thanks for the updates.
I am so excited to see you guys on Saturday(if the weather cooperates).
Tell Jeff I am looking forward to eating a hamburger at the rainbow cafe with him. J\K (haha)
take care and we are always praying for you guys!!!

Anonymous said...

Hang in there Brynn, I am looking forward to seeing you tomorrow, even if its just a quick hello. Please, let me know if I can bring you anything. Luv mindy brown

Angie said...

I am glad he is doing well and there is no issues to report! I am happy they found the infection quick so he can get better fast! Thinking and praying for you!


Terry said...

Sounds like he is really doing good. I think I am getting over this cold. So I hope to get up there soon. I miss you. I hope you are holding up ok. Remember I am here for anything! LYL!!

The McOmie Four said...

Hey Brinn,
This is always the hardest part, waiting... I just want you to know that your attitude and spirit have had a profound effect on me and I am so grateful for the blessing to have known you. We are still on the 3rd floor with RSV. I am not sure how contagious it is now or else I would come and see you. Thank you for your example and friendship. Just keep the faith... that only us heart moms can understand. We will be praying for you and yours.

Andrea said...

Thanks for posting updates on Alex-so many people are thinking about and praying for him. I'm sorry he has an infection, I hope he recovers quickly and without complications. Our prayers are with you!