Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Tuesday, January 15, 2008

Shoot'in for Friday

Last night as Jeff and I were driving home, Jeff got a call that there was a sicker kid who needed Alex's bed space and they were moving him from the PICU to the third floor..Yay!!! he had an okay night but has been a little cranky pants today... I wonder if he is teething and just doesn't feel well all around... Other than that..Ry and Grandma Clawson came up to see him today and play in the playroom. They were a little nervous about the snow storm that breezed through... We were praying it didn't stick to the ground until they got home... Tomorrow they want to do a sedated Echo to make sure things with his pulmonary artery looks good... I think that is all... No news is good news I guess....


Anonymous said...

We are excited for you guys, a move upstairs means one step closer to going home. I always have mixed feelings about the third floor, it is closer to going home but the nurses in the PICU are just something special. The nurses on the third floor are good but they have 3 or more patients and do the best they can. Anyways, we are thinking about you guys and can't wait for you to be able to go home!

Eric Quinney
Dad to Bryson

Anonymous said...

That is so cool you guys have moved upstairs. He was looking really good when I came to visit with you on monday. I really do hope you can be home and stay home by the weekend.

Anonymous said...

I watch your blog everyday or more. I am glad that he made it out of the PICU. Things looked pretty yellow the other day and those of us that have lived in the PICU know that yellow is not a good color to have going on. You are in our thoughts and prayers. We are glad that as we have our up's and down's that we are at least trending up. What more could we ask for? Love ya guys.

With Hope and Love,
Kaidence's Mommy