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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 24, 2008

01-24-08

Today has been much better. He actually had a relatively great day yesterday too... Most of the cultures are coming back negative which means that the infections WAS in his ears... and he is getting better with out antibiotics for those. I had to place a ng tube last night. It made him gag and throw up, but he was loosing weight and they needed to get his calories back up...So they fed him via the ng continuous feeds last night and today he can have what ever PO....He is weened off most of his meds and doing pretty darn good... Today we hang out and see if anything grows on those cultures, some take longer to present....That's about it....

8 comments:

Joni said...

I'm so sorry you've had some rough spots in the road and I'm SO happy to hear that things are smoother today! Hopefully they continue to improve and you're able to return home as a family soon. Thank YOU again! ;)

Big hugs,
Joni

carolyn q said...

Oh, I have so wanted to call you, but I have been given Dr.s order since I have Laryngitis that I am not to be talking. DO YOU KNOW HOW HARD THAT IS FOR ME??? I thought that might make you laugh?
Anyway, I am glad that he is doing better with a prospect of coming home soon:0)
Hugs,
Carolyn

Angie said...

Hey Brynn! I am so glad things are looking up! I am proud of you for doing all that you are doing! You are a TOUGH CHIC!

Big hugs!
Angie

Melissa said...

I remembering having to learn to place an Ng with Elaine. It is not fun. I hope that it really helps with his weight though. We like chubby babies! :)

Jennifer said...

Kiss those shrinking toes for me! And get him chunked up again, ok?! cause we can't have Alex smaller than his girlfriend, Jordyn.
Give yourselves kisses and don't you dare come home for good without letting us know.... we have a supper all ready for yall.
Love yall.

Mindurs said...

Who knew that having ear infections could be an exciting thing. I am glad that they haven't been able to find infection any where else in Alex.

Give him hugs from us!

Anonymous said...

I am glad he is feeling better. He's so darn cute- I hope things continue to go well. We love you guys!

JJ

jenica said...

so glad he's doing better! one day at a time...