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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 10, 2008

Our little two-timer

I know what your thinking...But what I mean by the title is....It takes Alex two times to do most things.... Like have his first surgery, be extubated, move to the third floor, have c-diff, pass a swallow study, have the cath to balloon open his arch... And the list goes on and on and on.....So today was a big day because it was the SECOND time he was extubated this stay!!!!!! I was able to hold him and love on him...He seems to be doing well and I am thankful for days like today....Jeff can't wait to be done with work so he can hold him too!!! We watched our little friend, Kaidence get ready to go (h...)..We wish them the best!!!!!
-Brynn

9 comments:

Anonymous said...

Good news - I am glad that you get to hold your little guy again!

Anonymous said...

Yeah! I am so glad you got to hold him today, what a good day!! I'm so glad he is improving. We will continue to pray for him.

Anonymous said...

Oh, that is the greatest joy in life. I hope that you guys are doing well.

Anonymous said...

I am so glad that you get to hold Alex and that he is doing so well. Happy Day!! Your family is in our prayers.

Anonymous said...

YEA!!! I am so glad he got to hold you!! I bet that is what he really wanted!! I am so glad things are moving along! You go Alex!! LYL

Anonymous said...

So glad to hear you got to hold that little fighter! We love you guys. Wish we were there to see you through.

Anonymous said...

Hooray!! I bet he is just soaking that mommy and daddy time in!!

Way to go Alex, we are so proud of you!!

((HUGS!))

Pam and Rhett

Anonymous said...

:)!
thanks for all the info all the time. we are always reading and thinking of you, just so ya know

Anonymous said...

Yahoo! I hope that things continue to progress well, so he can go home very soon. Oh, there is NOTHING better than being able to hold your little one!
Hugs,
Carolyn