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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 10, 2008

Our little two-timer

I know what your thinking...But what I mean by the title is....It takes Alex two times to do most things.... Like have his first surgery, be extubated, move to the third floor, have c-diff, pass a swallow study, have the cath to balloon open his arch... And the list goes on and on and on.....So today was a big day because it was the SECOND time he was extubated this stay!!!!!! I was able to hold him and love on him...He seems to be doing well and I am thankful for days like today....Jeff can't wait to be done with work so he can hold him too!!! We watched our little friend, Kaidence get ready to go (h...)..We wish them the best!!!!!
-Brynn

9 comments:

mindurs said...

Good news - I am glad that you get to hold your little guy again!

michele said...

Yeah! I am so glad you got to hold him today, what a good day!! I'm so glad he is improving. We will continue to pray for him.

The McOmie Four said...

Oh, that is the greatest joy in life. I hope that you guys are doing well.

Heidi McMillan said...

I am so glad that you get to hold Alex and that he is doing so well. Happy Day!! Your family is in our prayers.

Terry said...

YEA!!! I am so glad he got to hold you!! I bet that is what he really wanted!! I am so glad things are moving along! You go Alex!! LYL

Jenn said...

So glad to hear you got to hold that little fighter! We love you guys. Wish we were there to see you through.

Pam said...

Hooray!! I bet he is just soaking that mommy and daddy time in!!

Way to go Alex, we are so proud of you!!

((HUGS!))

Pam and Rhett

the roberts said...

:)!
thanks for all the info all the time. we are always reading and thinking of you, just so ya know

carolyn q said...

Yahoo! I hope that things continue to progress well, so he can go home very soon. Oh, there is NOTHING better than being able to hold your little one!
Hugs,
Carolyn