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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Sunday, January 13, 2008

evening update...

We had a blast driving with and spending a little time with Ry today... She has been so good through this all. We asked her what she learned in primary and she said... I learned about Heavenly Father, Jesus Christ, and that other boy...We asked her if she was talking about The Holy Ghost and she said "nooooo Joseph Snuff" (Smith)..Smart little kid... We did have a better day today...A lot more like our little Alex... Issac's surgery was on Friday and things went well..To clarify, there are two Issac's, one that is five and doing well at home and the other is a new little one that we have just recently met... We are so grateful for all our friendships.....Well tomorrow is a new day and we will see what that all brings....

2 comments:

Ashley said...

Of course you can link our blogs. I hope it is ok that I've had Alex on mine. :o) I am glad you were able to spend some time with your little girl. This is so hard on the siblings that they need extra special attention. If you need a babysitter (and she is healthy) I am home all day long. Kelsi would love to play with her. We just live in Riverton. Let me know. I hope Alex has a good week and gets to move to the floor.
Ashley Wiley

Di said...

Just wanted to let you know that I check your blog and that I think about you guys.
I pray that everything goes well.