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Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Sunday, January 6, 2008

couple of photo's

 

 

 
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7 comments:

Anonymous said...

Oh he is so beautiful!!!! He is looking so good. Thank you both for posting pictures. I loved seeing Ryleigh yesterday for a few minutes. Steve asked her if she knew who he was? Then told her that he was Ryker's Grandpa. When Ryleigh and Diane came in alittle later Ryleigh pointing to Steve that he was Ryker's Poppa. :) We love you and our thoughts and prayers have you in mind. Love you all. The Luthi's

Anonymous said...

Alex looks so good!!! I'm glad you posted some pictures...Jeff looks like he's living in the laps of luxury...ha ha ha, funny we've done the same thing before in those same rooms.

Prayers, Mike

Anonymous said...

Oh, you just gotta love those sleeping arangments! Looks comfy, not!
I see that Alex is more pink than before, How encouraging.

Hugs
Carolyn

Anonymous said...

Wow Brynn & Jeff,

You would think for what you have to pay in medical bills you would have a little more room. I've seen motor homes at the hospital before too! Hang in there, he looks good. Your pictures remind me of the ones I would take when I worked at PCMC. We have been thinking and praying for your family all week. I ran 24 miles this week and when I get tired I think of little Alex (he is an inspiration!) We missed Ry in primary too! If I can do anything for your family, let me know (I like to clean houses for fun). I am almost done editing Jeff's family pictures. So I will send them soon. Take care of yourselves!

XOXO

Anonymous said...

The pictures are great! That room is no anniverary inn! I hope you are holding up. Alex looks good. I hope you have had a good day today! LYL!!!

Anonymous said...

Wow Brynn! Those picutres are touching! Alex looks like a little prince! He looks healthy! I am glad things are going okay! Still praying for you! Let me know if I can help out in anyway!

Anonymous said...

Thanks so much for keeping us updated. You are constantly in our thoughts and prayers. Alex is such a champion! Way to go buddy! Keep going!