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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, January 2, 2008

4

Alex did great!!!!! He is now in his room and on the road to recovery. He is swollen like before and is such a hard stick for IV's that they had to get a little creative with his lines. They ended up not needing to repair the aortic arch. It's gradient pressure is 5 and the surgeon felt like this was acceptable. Dr. Kouretas had to really take his time on the pulmonary artery it was very narrow and he spent a while repairing this. Then he also fixed the tricuspid valve.. it all looks better. Then they did the Glenn on top of those other things. His chest had some very intense scarring and they attatched him to the cannuals to the heart and lung by pass before even opening him up. The scar tissue was very packed, most likely due to the infection he contracted last time. It might also have been the delayed closure that occured from the revision of his Sano conduate. He is on a few drugs to keep him "happy" they have already closed his chest and have talked about extubating. I don't mind going slow with these things.. It is all so different than before...(not as bad as I thought Michelle) they were thinking tonight but want to maybe let him rest after all that and do it tomorrow. Jeff and I are pleased with how things are looking and want to thank everyone for all the prayers and fasting, we feel the love from everyone....

14 comments:

carolyn q said...

OH, this is the best news ever! I am so glad that he is doing well and now this anticipated surgery is over so he can recover. I look forward to seeing Alex the next time look a lot more pink. Thanks for keeping the blog updated, because I know there are many that have been waiting for the news. We will continue to keep Alex and your famiy in our prayers.
HUGS<
Carolyn

Kenny & Michele Kingsford Family said...

GO ALEX!!! Glad to hear that things are going well so far. Like I said - you guys deserve this time to be different than last time! We will continue to send prayers your way.

Michele

Anonymous said...

So happy to hear things are well. Love mindy and family

The Reynolds Family said...

Yeah Alex! Sounds like things are going so well. Make sure you sleep! We are thinking and praying for you all. -Kristen Evers

Andrea said...

I'm so glad it went well. What a trooper Alex is. . . all of you are! I'll keep him in my prayers. Happy New Year!

Christina said...

I am so thrilled! What a blessing. I am glad Dr. Kouretas spent the time he needed to make sure things were fixed properly. Yeah! Thanks for the updates I was checking off and on all day. We will continue to pray for Alex's recovery.

Love you guys!
The Davis Family

Anonymous said...

We are so glad things went well for Alex. We'll keep you guys in our prayers.
Love, JJ & Adam

Mindurs said...

So happy to hear things went well. We have been thinking about you guys and praying for Alex all day. He is such a strong little guy!

Coach hopes his little buddy gets better soon so they can get in some more playing time.

Love you guys and we will continue to still pray for you!

Angie said...

Wow Homer Family! I am so glad things have gone well today! We will continue to pray for you all!

Mike and Rebecca said...

Great its nice to hear that things went well, we've been checking the blog off and on all day. Thanks for the updates...

Hugs, Mike

Pam said...

So glad to hear that things are going well.

We have been praying for you guys and checking the blog all day for updates.

Hope you are all home soon!!

((Hugs!!))

Pam and Rhett

Terry said...

YEA!!! I am so glad things went well. Alex gave me a great birthday present. Thanks Alex! Now you all need to rest the best you can!! We love you all, call for anything!! Love you!

Megan said...

I am so glad that things went well for Alex! Hooray!

Anonymous said...

Yeah Alex!

We're thinking of you still as you start down the path of recovery.

Love,
Joni