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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Monday, January 7, 2008

He can't be extubated until they do an MRI to check the function of his newly reconstructed pulmonary artery and the tricuspid that still has a little leakage, they can't do a MRI without taking out his pacer wires (because it is a magnetic current and pacer wires are metal) and they also need to take out his other lines that have metal.. But, they can't take those out until they get a deep line so he can still have meds that go directly to his heart and they can't put in a 'deep' without a peripheral and he is a hard poke...... So they had to wait for the top dog on the IV team and they were able to get his IV first poke and now I am waiting while they are putting in the deep....WHEW!!!! then we will work backwards until we have successfully gotten him extubated.... Ry just got the hand-off to the Clawson's and had a blast with the Homers..She had a great time at dance and is glad to be back doing some normal things..She gets to go to a Irish Dancing performance tonight and then it is Auntie Aves Birthday on the 9Th. They are going roller skating.... She can hardly wait....Jeff started back to work today.. I can't imagine how hard it must be to think about work and stay focused with everything else going on...He is and amazing husband and father. We went to the Primaries branch yesterday...There is and amazing spirit in that meeting...I look forward to it while we are here..Jeff asked the Church reps if they would mention his name for the branch presidency...HAHAHA HEHEH... Can you imagine 30 min sacrament each Sunday with no interviews or tithing settlement????.... Signing off for now...Brynn

4 comments:

Jennifer said...

Yall are soooo not allowed to leave our ward! So get over that fantasy Jeff!
Ok, as ridiculous as all of the conditional testing sounds, I am glad that they have started the process and actually got a first attempt IV in Baby Alex. Good for him. Maybe he will be a first time is a charm baby after all.
Take care of you.

Melissa said...

Like with all heart babies, they do things at their own pace. I'm glad the 1st poke worked. That is always a relief! I think Jeff has the right idea about the primary's ward. I also really enjoyed it the times we were able to attend. We love you!
Melissa & family

Terry said...

Sounds like thins are moving along. I am so glad you had a good day yesterday. And that things with Alex are going along.
Tell Jeff you are staying in our ward!! No Call backs! LYL

Lance and Raegan said...

We were glad to see you at dance! Is the big IV guy named Dave??? He is really good! HOpe all is well and seriously, please let us take Ryleigh if you need help, I can throw a mean tea party!!!