Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Wednesday, January 2, 2008


Just got updated that things are going ok, just slow. I cant imagine how it must to be working on such a small heart. We are so thankful to those taking such great care of our little boy today. We still have a few hours.


Jenn said...

We are praying for you and wishing all the best. We wish we were right there with you. Keep hangin in there. We love you guys!

Kaidence's Mommy said...

Hey! I really did save you a place in "heartland" in fact right across the hall. At least that is what the board says! YEA!!!! Bed 9 here you come! We are so happy that all is going well.

With Hope and Love,
kaidence's mommy

Anonymous said...

hugs and kisses, luv mindy