Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, January 2, 2008


Just got updated that things are going ok, just slow. I cant imagine how it must to be working on such a small heart. We are so thankful to those taking such great care of our little boy today. We still have a few hours.


Anonymous said...

We are praying for you and wishing all the best. We wish we were right there with you. Keep hangin in there. We love you guys!

Anonymous said...

Hey! I really did save you a place in "heartland" in fact right across the hall. At least that is what the board says! YEA!!!! Bed 9 here you come! We are so happy that all is going well.

With Hope and Love,
kaidence's mommy

Anonymous said...

hugs and kisses, luv mindy