Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 3, 2008


just a little update....Alex was doing his trials on the vent and did well although they came into listen and could not hear a leak..... A leak (for those who don't know the hospital lingo) is a space in his airway. With a tube down his throat there is a tendency to have your throat swell around the tube.. so having a little space around the tube gives them a better chance of coming off the vent. So they gave him a little bit of steroids to help and we will try again soon. He is looking good on his sats... He was sat-ing in the high 60's low 70's at home and now he looks more like the mid 80's.... We are right now turning the versed and the fentinal off...So we might be in for a little bit of a bumpy road....we'll see....His blood pressure looks good and his temp is good.... so we just will hang out for a little while... it might be a long-ish night....


Anonymous said...

Just one word "AWESOME" that's all I have to say!

Anonymous said...

We really enjoyed being able to see you guys yesterday; We are glad Bryson got to come home today but sad that we live a little bit too far to drop in and say "hi" everyday that your there. We saw Alex in the PICU before we left and he is looking great. Sorry we missed you, I guess you deserve a break to go take a shower!!!

Love Ya Guys!

The Quinney's

Anonymous said...

Hey Homer Family: I am glad to hear things are going okay up there! We are thinking and praying for you !


Anonymous said...

Sounds like things are going along good. That is great. Please call if you need ANYTHING!! We are just a very short drive away. And we will be there as fast as we can. Love you guys!
Moody & Terry

Anonymous said...

I am glad that things are going well. We are thinking of you often.
Armand & Sara

Anonymous said...

Good job Alex!! Way to be pink!!

Rhett has a tendancy to ride the vent when he is on it too.....I always tell them he is a lazy booger when it comes to that. They usually have to stop all sedation before they do trials on him. Then we are holding down a wild monkey for a few hours.

When we were there last Jan Dr. Poss was the attending, and he put him on a different cocktail of presedex and a very small amount of versed. It made it so he was awake, but didn't care that he was intubated. It was a new thing that he had been doing at San Deigo Children's hospital.

I know the nurses all thought Dr. Poss was a little cukoo but we loved it. It made it so Rhett didn't ride the vent, and after they started him on that was when his lungs finally cleared up.

Anywho...I hope the steroids work well and he gets that little leak soon! Steroids always work wonders for Rhett!

Big ((HUGS)) to you guys, and we are keeping you in our thoughts and prayers!

Pam and Rhett

Anonymous said...

So glad to hear that things are going well. Let me know if you need anything. I can take Ryleigh to dance. Just call.

Anonymous said...

pink is truly is the best color! ;-D

so happy you're little man is doing so well. hope that you're getting the rest that you need. you guys are wonderful.