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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 3, 2008

Pink its my favorite color...

Has anyone heard that song?????? Well our little man has nice pink toes and fingers... His little face is a little blue, but it may be due to the strange shade of green that the walls are painted. We have slowly been weening his vent in hopes to extubate. The funny thing is that he is so happy to ride it and not work at his own breathing. They have decided that he is resting so well that they don't want to bug him. He continues to pee pee... a huge thing for these kids coming out of surgery.. who knew you would be so happy about things like "liquid gold". He is moving some and last night he opened his eyes to make sure daddy and mommy were there with him. Last night we stayed in the sleep room. They are these small rooms with a twin bed, a chair, and a light switch...And some darling art hanging on the walls!!!!!! Have you ever seen how big I am and how tall Jeff is? we don't even try to fit in the bed together. But, we do get tricky and last time we stayed in the room together Jeff slept on the floor in a sleeping bag... this time we pulled the matress off the bed and put it on the floor; put blankets and the sleeping bag on the box springs and we slept like a charm..... I took a few photo's of our little man post surgery and our little sleeping experiance and will post them when we get home for a few minutes...

4 comments:

mindurs said...

Oh Brynn I am so happy to hear he has pink little hands and toes. I would absolutely love to see pictures!

If you would like to stay at a place 15 minutes away from the hospital I can hook you up. My parents live near by and if it helps any I can stay there too. They have plenty of beds to spare. Just a thought! Give me a call if this sounds good to you.

Ashley said...

It's so nice to see the color change after surgery. It makes everything better. How is his heart rate and saturation? I am glad things are going well. I will continue to pray for Kelsi's little heart buddy. Good luck.
Ashley Wiley
(Intermountain Healing Hearts)

Juli said...

I have been watching your good news. I'm very happy for your family and baby Alex. May Alex continue on his good health journey.

Ashton's Family said...

I am so excited that this part is over finally and he is doing well! I was thinking about when Ashton had his Glenn. He was so warm compared to before the surgery.

You’re always in our thoughts,
Nathan