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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Saturday, January 5, 2008

Dips in the plan

Heart kids are tricky and they follow their very own agendas. Last night at about 10:15 Alex went on c-pap and was just not being a good breather. Then at around 1:oo am he was vented again. They were able to bag and suction out some major plugs which is good but he will need to rest today... They FINALLY got him to pee pee, so when i walked in this morning the first thing I noticed is how much he starting to look more like Alex and less like the Michelin Man. I brought up a couple more home comforts for him and I am washing the few things he already had so that they will stay nice and infection free.....We thought Ry would be able to come in and see him yesterday... She will soon enough. I am sure Alex felt her spirit in the PICU waiting room... She was happy to play in the playroom. He went back up on some of his meds and they will try the ween all over again...I understand these ups and downs and feel confident he will be well when it is time...So for today we hang out and rest........

5 comments:

Anonymous said...

Homer family, I hope you read these comments, I will be coming up to the hospital on Thur. of next week, the 10th, for an apointment for the 3rd Brown. Let me know what I can bring you. Love Mindy

Heart Mommy said...

Hey Mindy, of course we read these comments.lol....we are doing well.. I don't think we need a single thing..thanks though...

Angie said...

Hey Homers!
I am so glad things are going okay. I have been thinking of Alex for the last week! I will continue to pray for him.

Terry said...

Sounds like a quiet day is what he needs. Hang in there!!
LYL!!
Terry

Nora Mair said...

Hope all is well. Thoughts and prayers to you....