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Life with a boy and his Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum and two Super Sisters and one yummy baby brother.

Thursday, January 31, 2008

sore legs

 

 

 

 

We've been busy the past couple of days..understandabley so...We have had MD appointments everyday. This is the first day home... Alex got his 6 month immunizations on Monday and he just doesn't do well with those...Fever, vomicking and such... Anyway with a couple of Ped appointments and a blood draw yesterday to check his lovenox levels we are home and today seems like a better day... I thought I would post a couple of pictures of Alex happy to be home... His cute little teeth...the pharmicy we are running out of the house (no pain releif, happily he is just on tylenol) and his poor little legs... from all the injections...
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14 comments:

Sara said...

I am glad he is home and doing well. I hope that you are getting some rest too. Please let me know if you need anything.

Di said...

How good it must feel to be home again. You guys are troopers! Let us know if you need anything :)

The Curtis Family said...

What sad little legs! You are such a good mommy! I am glad you guys are all doing well.

---Allison

Megan said...

Glad you guys are home!! (:
Alex has got the cutest little smile!!
Lovonox injections are no fun! How long does he have to be on lovonox for?
Well, we are glad you guys are home and that Alex is lookin so good!

Jennifer said...

Ughhhhh! I hate seeing those bruises from his injections! But I am so glad to see him looking so cute in that awesome outfit and with those adorable teeth!
We are soooooo glad that yall are home.

Anonymous said...

Alex has an adorable smile! He sure is a strong little guy, like his parents. ;)

Hugs,
Joni

Mindurs said...

Look at those cute little teeth! Alex is such a strong little guy. Hopefully the affects of his shots will wear off soon.

Nora Mair said...

Glad you're home and doing better. I finally found someone to cut my hair. It hasn't been touched since you cut it right before your boy was born. You're missed in the hair world but you're keeping your baby alive which is much more important. kiss those legs for me.

Angie said...

What a cute little dude! Those little thighs look like they hurt! But I am sure they are nothing compared to what he has been through thus far! Stay tough little Alex! Jake would love to play with miss Ryleigh! Call me and let me know if there is a good day for her to come and play!

Heidi McMillan said...

So happy Alex is home and smiling. He is such a cute little guy. It makes me sad to see his poor little legs. You are amazing!

Lance and Raegan said...

His little legs are soooo sad. I know now why he doesnt want you to even change his diaper. Im glad he is home and happy. See you on Monday...Observation Day!

jenica said...

i'm so glad you are finally home. i'm sure it will take some getting used to, but yay!!!

he is SO cute!

Crysm said...

Your counter looks just like mine!... so sad for those cute chubby legs.

Tammy and Parker said...

Oh my! I've been out wandering the web this morning and saw your home pharmacy and it looks so much like ours!

Parker has severe pulmonary hypertension, is trached, a g-tube and two ostomies.

And a pharmacy of meds just like your sweet little guy's.

By chance do you go to PCMC? That red wagon looks way familiar. :)

Tammy and Parker