Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Thursday, January 17, 2008


Alex is down having his Echo right now...Nothing to report just yet!!!


Anonymous said...

Thanks for the update Brynn, let us know how it went. luv mindy

Anonymous said...

G-O--Let's Go--Let's Go Echo!
Ok, I have too much cheerleader in my brain- sorry!
We are thinking of you!