Life with the oldest sister who loves theater and fashion, a boy who has Hypoplastic Left heart Syndrome, now Heart transplant and partial Liver from Aspergillius, but thinks fishing and electronics rule. The most amazing middle-child-sister-aspiring artist. Also, a girl and her Tethered Spinal Cord Syndrome, Neuro Endocrine Cell Hypoplasia, Lumbar Hemangioma, asymmetrical gluteal cleft, Pectus Carinatum who loves littlest pet shops, American girl dolls, playdates. And one yummy baby brother who has a coarctation and bicuspid valve and thinks super heroes are the best.

Wednesday, January 2, 2008


just saw Dr. Kouretas, they are just starting


Anonymous said...

Our hearts are with you today. We are thinking of you and praying for little Alex. Keep up your strength and faith.Let us know if we can do anything. love the pattons

Anonymous said...

Just checking in to see how things are going. Thinking and praying for you all today.


Anonymous said...

Just wanted to let you know we are sending lots of prayers Alex's way today! We're sending a few your way too.

I'm guessing the cannon on New Year's was Becky and Jim - right? Ha Ha

- Alayna

Anonymous said...

We are praying for you baby Alex!

Anonymous said...

I will be checking your blog all day for updates. Good luck!